Category Archives: Lifestyle

precious emmy | charlotte family lifestyle session

Meet Miss Emily “Emmy” Jane. Sweet Emmy has a genetic condition called Trisomy 18 (similar to Avonlea’s condition of Trisomy 13. Both Avie and Emmy have an extra chromosome; Avie has an extra 13th while Emmy has an extra 18th. Trisomy 21, where a child has an extra 21st chromosome, is also known as Down […]

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Michelle - October 29, 2016 - 6:50 pm

I don’t know if this man could help you, but he saved my brother. He had to have a heart transplant at the age of 10. I’m praying for your lil girl and family!

Jennifer Cosby - October 31, 2016 - 10:01 pm

Hi. I am a photographer, a heart mom, and also a special needs mom. A friend shared this story with me about your Trisomy babies. Of course makes me furious. I’m starting to think my purpose in life was to bring this stuff to the surface that it exist!!! I was told by a nurse when my daughter was born that I was lucky she was a Tetralogy of Fallot baby and did not need a heart transplant because special needs kids did not get transplants. I was floored. Anyways, I guess you probably know of Rick and Karen Santorum and their daughter Bella? Have you tried reaching out to him for help maybe? See if he can apply any public pressure of some sort? Just an idea I wanted to share. I hate this is happening!!!!

Elizabeth S. - November 4, 2016 - 2:47 am

Has the Charlotte family reached out to CHOP (children’s hospital of Philadelphia) to see if they will consider surgery for Emmy??!? CHOP performs many new up and coming surgical techniques and experimental things. Perhaps they should contact this facility. I live 1 hour from there and will help in any way I can.

Elizabeth S. - November 4, 2016 - 3:22 am

To contact CHOP they should call: 267-426-9600 which is the number for second opinions, referrals, and information about their services.

Danielle Isenhour - November 12, 2016 - 10:22 am

Please have this family get in touch with me. My daughter has full Trisomy 18 and is now 8 1/2 hears old. We live in Laje Wylie, SC so we are just right down the road. I know a surgeon and can help a lot!

Robin - December 15, 2016 - 8:44 pm

Have they tried Barnes in St. Louis? I think they are willing to do this surgery if she is otherwise healthy enough for it.

family lifestyle session | the grahams

When we were brainstorming a name for our photography business almost 7 years ago now, we chose Project:Life because it truly encompassed what we wanted this business to be. We knew even then that we didn’t want to limit ourselves by naming our business something that would not fit if we ever decided to transition […]

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